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Should 4+ Pseudomonas be treated?

MAC & Bronchiectasis | Last Active: May 22, 2023 | Replies (112)
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@sweethighland

Thank you Sue. Yesterday, we primarily discussed the challenges of eradication of B cepacia as this is my main concern. ID doctor said that eradication is extremely challenging and may be impossible. If attempted, it
would involve an prolonged regimen of IV therapy and may not be successful. Even if successful, there's no guarantee I would not be re-colonized. ID doctor encouraged me to focus on my symptoms rather than what I grows on my sputum culture as it does appear the results make me extremely anxious. 🙁

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Replies to "Thank you Sue. Yesterday, we primarily discussed the challenges of eradication of B cepacia as this..."
Sue, Volunteer Mentor | @sueinmn | Aug 19, 2022

For the same reason, my ID & pulmonology docs refuse to do a sputum culture on me unless I am symptomatic. They rely on 2x yearly CT scans plus symptoms to decide how I am doing. I was treated for MAC for 2 years and never got a negative culture, even though my CT cleared up a lot. After 20 months, I am still symptom free using inhalers and now 3x weekly 7% saline.
I hope I never need those drugs again.

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