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Sjogren’s Syndrome – Introduce yourself and meet others

Autoimmune Diseases | Last Active: Dec 3, 2023 | Replies (621)
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@cantek

Hi Eileen,
I was diagnosed with Sjogrens due to dry eyes and a referral to a Rheumatologist.
The diagnosis is made by labs and symptoms.
I too have days where my lymph nodes go up but it’s normal with Sjogrens.
I pay attention to my body and slow it down when my symptoms worsen. Hopefully you are using lubricated eye drops; there are mouth washes made specifically for dry mouth also.
You may get in sooner to see the Rheumatologist if you can get your new PCP to call and ask if the Rheum could see you urgently. Looking at your symptoms you really need to get in!

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Replies to "Hi Eileen, I was diagnosed with Sjogrens due to dry eyes and a referral to a..."
eileenb1022 | @eileenb1022 | Aug 20, 2022

I know. New pcp same city but different hospital I called rheum at her hospital said I could probably get in before Feb but no idea what to expect from this pcp. My sinus dr ran like 5 sjorgens tests all negative so I can't explain it. I feel awful. Stopped Flonase using saline spray and biotene mouthwash I'm still miserable eas up all night last night with bad cough and going to the bathroom. When I go to new pcp on the 30th no idea what to tell her dealing with so many different health issues. Going back to eye Dr next week as eyes kill and allergy eyedrops not helping

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