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Living with Neuropathy - Welcome to the group

Neuropathy | Last Active: Oct 27 5:51pm | Replies (6152)

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@artsyseven

I am 65 years old. I am not sure how long any kind of peripheral neuropathy may have started on me as I have been on Gabapentin and Tegretol for seven years for Trigeminal Neuroglia. I think that it has masked what is now noticeable. Last fall I noticed my feet tingling with some stabs in my ankles. Over the last 10 months or so the progression has gone up my legs and down my arms. There has been a few scary moments lately of waking in the morning to find the tingling in the middle of my chest, down my arms into my hands and even my jaw in front. It had me worried about my heart but my pulse and pulse oxygen was fine and no pain. Just the annoying prickly tingle as everything had been asleep. I want to go to a neurologist and am trying to. My initial symptoms at the time was just in my feet and ankles and I was denied to get into the office. I am afraid that if I say how things have progressed that it will be viewed as me making things up just to get an appointment. Any thoughts on what I should do?

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Replies to "I am 65 years old. I am not sure how long any kind of peripheral neuropathy..."

Hi @artsyseven, Welcome to Connect. Symptoms can be a little scary sometimes. You mentioned you have been dealing with Trigeminal Neuralgia for seven years and now the condition has progressed. There is another discussion that you may want to join and read what others with TN have shared.

-- Trigeminal neuralgia: What helps stop the pain?:
https://connect.mayoclinic.org/discussion/trigeminal-neuralgia-5/
Are you able to seek help at a teaching hospital or major health facility like Mayo Clinic?

artsyseven -- You commented that you were denied to get into the office, I assume you are referring to your doctor's office. At the end of your comment, you asked for any thoughts on what to do. I have one. How about seeking out a new doctor. I have always considered my various doctors to be a partner in my health care. It has worked out well for me. Wish you the best. Ed