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CIDP and concerns about treatment risk factors

Neuropathy | Last Active: Aug 21, 2022 | Replies (11)

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@kimegraves

Good afternoon, I am so very sorry your Dads condition has deteriorated. Many times IgG therapy has to be individually designed for each patient and it is common that after a period of time they may need to have adjustments made to the infusions. Have you spoken to your Dads physician?
Have you verified with his neurologist that it is the CIDP that is causing his declining condition or is there some other medical problem that has now precipitated? Please make an appointment with his neurologist ASAP.
CIPD is a very difficult disease and many times IgG alone does not diminish all symptoms. IgG along with an anti inflammatory diet, exercise and decrease stress has helped me immensely. I notice that when I stray from either physical exercise or participate in poor diet choices my symptoms return and are at a high level. Please keep in contact.
Kim

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Replies to "Good afternoon, I am so very sorry your Dads condition has deteriorated. Many times IgG therapy..."

Thank you for your reply! His neurologist is leaving the state soon and has not been responsive to his questions. We have a phone consult with Mayo tomorrow, so hoping for good things! I appreciate your input!