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CIDP and concerns about treatment risk factors

Neuropathy | Last Active: Aug 21, 2022 | Replies (11)

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@johnbishop

Hello @jamiemccorkle, Welcome to Connect. Thank you for being an advocate for your dad. I'm sorry to hear his IVIG treatments have stopped working for him. We merged your post into another discussion on the same topic here - CIDP and concerns about treatment risk factors: https://connect.mayoclinic.org/discussion/cidp/ so that you can connect with other patients like @kimegraves @casey1329.

While we wait for other members who have been treated for CIDP at Mayo Clinic to share their experience, I thought I would share the following video with you.

" Jun 1, 2018 Dr. P. James Dyck and Dr. Peter J. Dyck, Neurologists from Mayo Clinic in Rochester, MN, dialogue about an article appearing in the June 2018 issue of Mayo Clinic Proceedings, which examines the “discovery” of Chronic inflammatory demyelinating polyradiculoneuropathy from its roots. The article provides and update on the current and best treatment options. " --- Chronic Inflammatory Demyelinating Polyradiculoneuropathy: https://youtu.be/eZL2wx4xQ08

Are you looking to get an appointment at Mayo Clinic for your father?

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Replies to "Hello @jamiemccorkle, Welcome to Connect. Thank you for being an advocate for your dad. I'm sorry..."

Thank you for your response! We have a phone consult scheduled for tomorrow, so crossing our fingers for good news! His neurologist is leaving the state soon and has been negligent in answering our questions, unfortunately!