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CIDP and concerns about treatment risk factors

Neuropathy | Last Active: Aug 21, 2022 | Replies (11)

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@jamiemccorkle

Has anyone here seen Mayo for CIDP treatment? My dad who is 74 has been receiving IVIG treatments for 2 years but they seemed to have stopped working and he is quickly declining. Please any advice would help. Thank you!!

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Replies to "Has anyone here seen Mayo for CIDP treatment? My dad who is 74 has been receiving..."

Hello @jamiemccorkle, Welcome to Connect. Thank you for being an advocate for your dad. I'm sorry to hear his IVIG treatments have stopped working for him. We merged your post into another discussion on the same topic here - CIDP and concerns about treatment risk factors: https://connect.mayoclinic.org/discussion/cidp/ so that you can connect with other patients like @kimegraves @casey1329.

While we wait for other members who have been treated for CIDP at Mayo Clinic to share their experience, I thought I would share the following video with you.

" Jun 1, 2018 Dr. P. James Dyck and Dr. Peter J. Dyck, Neurologists from Mayo Clinic in Rochester, MN, dialogue about an article appearing in the June 2018 issue of Mayo Clinic Proceedings, which examines the “discovery” of Chronic inflammatory demyelinating polyradiculoneuropathy from its roots. The article provides and update on the current and best treatment options. " --- Chronic Inflammatory Demyelinating Polyradiculoneuropathy: https://youtu.be/eZL2wx4xQ08

Are you looking to get an appointment at Mayo Clinic for your father?

Good afternoon, I am so very sorry your Dads condition has deteriorated. Many times IgG therapy has to be individually designed for each patient and it is common that after a period of time they may need to have adjustments made to the infusions. Have you spoken to your Dads physician?
Have you verified with his neurologist that it is the CIDP that is causing his declining condition or is there some other medical problem that has now precipitated? Please make an appointment with his neurologist ASAP.
CIPD is a very difficult disease and many times IgG alone does not diminish all symptoms. IgG along with an anti inflammatory diet, exercise and decrease stress has helped me immensely. I notice that when I stray from either physical exercise or participate in poor diet choices my symptoms return and are at a high level. Please keep in contact.
Kim