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Trigeminal Neuralgia, Sjogrens Disease or something else?
Autoimmune Diseases | Last Active: Sep 2, 2023 | Replies (31)Comment receiving replies
Hello skywalker. I do not profess to have ANY answers to your wife's problems. I am a 51-year-old high school teacher and I have severe body aches and low grade fevers for 3 years. I have been treated for PMR (Polymyalgia Rheumatica) which began with a course of steroids (prednisone). Initially, I felt great! But as I decreased the steroids (as one must) the pain and fatigue returned. Not I am taking methotrexate and trying accupuncture. I wish I could say I have found a cure, but I have not. I totally understand the "no energy" aspect of your wife's condition. We have a 10-year-old daughter and there is so much I want to do with her. I am hoping to hear stories from people on this group of things that work to relieve the pain and fatigue. Good luck to you and your wife!
Replies to "Hello skywalker. I do not profess to have ANY answers to your wife's problems. I am..."
Hello Skywalker, I am new here,I want to tell you that I had trgiminal neuralgia It is a very painful thing to have , I live in Indiianapolis In. I went to the Indidana university hospital and underwent gamma knife treatment ,I have been pain free for 3 years now. You can look up gamma knife on the web,I believe there are only 60 of these machines in the USA. I still have fibromyalgia and other illnesses but not to the extent that it was befor e gamma knife, also there is a web site on trigiminal neuralgia try it. RuthAnne
Hello Ruthanne, Fortunately, my wife has not had symptoms of trigiminal neuralgia for a few years now. However, she has experienced a multitude of symptoms over the years, and now deals primarily with widespread pain, fatigue and occasional migraines. She now seems to have swollen lymph glands under her arms and in the lower abdomen area. Doctors just seem to not have any reliable answers for us. Her pain mgt. doctor has advised her to go to either the Diagnostic Center in Houston or the Mayo Clinic. Not sure which would be better, but she is very tired of doctors. I am glad that you have found relief from your condition. Best of luck to you!!
Hi NJR
Here's a hug for you being a parent with fatigue producing illness. My baby is 6 and I hate not being to keep up.
LizKat
Hello skywalker. It must be very difficult for the two of you. Don't give up and find a doctor who you feel comfortable with. Can u get a referral from your primary physician Fm cannot be cured but can be controlled so wife can have quality of life I have Fm but have many specialists. Prayers are with you two
Hi skywalker just letting u know I am thinking ofu. Jo
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Thank you njr. I too hope that we may find answers through this forum. Have you ever been to the Mayo Clinic? My wife's pain management doctor suggested that she go to either the Diagnostic Center in Houston or to the Mayo Clinic. I'm curious which one would be better. Thanks for the well wishes and best of luck to you and your family as well.