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Sjogren’s Syndrome – Introduce yourself and meet others
Autoimmune Diseases | Last Active: Dec 3, 2023 | Replies (621)Comment receiving replies
@eileenb1022 I’m really sorry that you’re in the middle of trying to find a good doctor. Once you find a doctor, be sure he/she knows that you think you have an autoimmune disease. I kept telling the doctors to “think outside the box.” None of them did, but maybe they learned that they should.
To help your doctor find out if an autoimmune disease is causing your symptoms,:
Learn about the health conditions in your family history. What health problems did your grandparents, aunts, uncles, and cousins have? Write down what you learn and share it with your doctor.
Keep track of your symptoms, including how long they last and what makes them better or worse. Share your notes with your doctor.
See a specialist who deals with the symptoms that bother you most. For example, if you have rash, see a dermatologist (skin doctor).
I know that you have a wait before your appointments, but you can put it to good use. Do as much thinking and planning as you can!
Have you come up with a list of questions for the doctor when you see them?
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Hi Thank you. there is a wait to see specialists which is hard but i understand the demand. i cant see the new GI until nov. i had a endoscope in june by someone else no anestesia then he gives me biopsy results via the portal i call they wont let me talk to him hence new GI but i have to wait. but its funny everything im going through there is no family history of. the only person inmy family who has a thyroid condition like me is my 2nd cousin. my oldest son does to but noone else with autoimmune diseases i seem to have possibly several which scares me, noone with GI issues or anyone in my family that had their gallbladder out and yes everything snowballed after my gallbladder revoval. my sinus dr last week did some bloodwork on me autoimmune all negetive one someone suggested i ask my new pcp for ANA i just got the results it was negetive. as well as 3 others. i know there are more to test for but the symptoms its just so hard.i feel like i got a giant ball in the backof my throat and it hurts to move my neck it feels so swollen.