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PMR Dosages and Managing Symptoms

Polymyalgia Rheumatica (PMR) | Last Active: Jul 27 8:00am | Replies (468)

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@kmeikle1

@joeblo746 If you have PMR and are not getting enough prednisone your pain will not subside. As the inflammation accumulates it will only get worse and you'll have a flare. I'm fortunate to have a Rheumatologist who knows that my body determines tapering, not some schedule. Three years ago I started on 15 mgs. which worked wonders for me. When I dropped to 12.5 (4-6 weeks later) I experienced some pain, but very manageable. That was three years ago. I still try, but struggle to get below 10 mgs. I was at 7.5 briefly, but had a flare and went back up to 12.5. and have been slowly reducing 12, 11, and now 10 again where I'll stay for awhile and make sure I stabilize. We're all different. Some people are in remission and off prednisone in a few years. For others, they're still battling PMR a decade later. According to Mayo, the average is 5.9 years. Unfortunately many doctors don't know this and think most of us should be fine in a few years.

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Replies to "@joeblo746 If you have PMR and are not getting enough prednisone your pain will not subside...."

I am beginning my 1/2 mg the end of this week. I do have shoulder, upper arm pain and my one hand. I take tylenol some nights, and it helps a little. I'm determined, as long as my blood tests stay normal to not go back on this Prednisone. Pain is not great but neither is my bone density and blood sugars on this. I may have no choice at some point but for now, I'm going to stay where I am. Exercise helps, and I'll continue with my walking. I see the Rheumatologist in 3 more weeks so I will see what the blood tests show. I do think it's odd that more people are getting this. My husband sees it in his patients. Strange.