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Transient Global Amnesia and its treatment

Brain & Nervous System | Last Active: Oct 15, 2022 | Replies (18)

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@colleenyoung

@kyoto, welcome back.
I noticed that you posted elsewhere (https://connect.mayoclinic.org/comment/738694/) that your diagnosis has been adjusted from transient global amnesia (TGA) to transient epileptic amnesia (TEA). I had to look these up to see that there is a difference and how they are treated is different.

See this article and excerpt.
- Transient amnesia: epileptic or global? A differential diagnosis with significant implications for management https://academic.oup.com/qjmed/article/107/11/915/1512956

"TGA is a syndrome of abrupt and temporary (<24 h) disruption of anterograde memory"
"TEA is a form of epilepsy ... Compared to TGA, episodes of TEA are typically briefer (<1 h), commonly occur on waking, have a high recurrence rate and may be accompanied by other features suggestive of epilepsy such as automatisms or olfactory hallucinations."

@dookster and @pam51, may also be interested in this discussion.

Kyoto, such a relief that you don't have Alzheimer's and that you know what you're dealing with now. How is your TEA being treated?

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Replies to "@kyoto, welcome back. I noticed that you posted elsewhere (https://connect.mayoclinic.org/comment/738694/) that your diagnosis has been adjusted..."

Dear Colleen and everyone,

This site is so interactive. I was glad to receive your answer so quickly.
Thank you for sending the link. It's really helpful.
For the TEA, I get prescribed Vimpat and Fycompa. I got started out on Vimpat (one after getting up and before bedtime) but alone this didn't suppress the symptoms, so this was Fycompa was added (two before bedtime).
My situation is way better than before but still not perfect. Also, as more time goes by, I increasingly notice that my recall of many years ago with friends and so on is much worse than my friends of that time. I figure this must be because the TEA was already present in my 30s, but I had no idea I had such a condition, and of course TEA fits are almost completely unconscious.
I am now trying to come up with ways to be more mindful in my life to avoid forgetting important information. But the loss of memories is random, and I can't keep a note of everything in my diary.
I would really like to hear about the experiences, and strategies to cope with TEA, of other people.
David