I am so sorry your are going through all of this. The road is unbelievably difficult. My husband receives his care at University of Michigan Rogel Cancer Center and we have been extremely pleased with the care he has received from his team. They have mentioned a trial on new medication coming down the pipes if the chemo were to stop working. As cancers present so differently in each person, I don’t know if that trial would be applicable to you but, if you are close/willing to travel, it may be worth inquiring at UofM. In the interim, please keep fighting for the care you want and need. I hope you have an advocate for you in this so you can keep your energy for your health. Prayers to you.