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Sjogren’s Syndrome – Introduce yourself and meet others
Autoimmune Diseases | Last Active: Dec 3, 2023 | Replies (621)Comment receiving replies
Thank you and thank you for the tips. I'm sorry you are dealing what I have regarding pcps. I have been through the same thing for over a yr
New pcp I see in 2 weeks is about 3 hours away in Boston. Hoping she will be better. I have a humifier running, laying down, using saline spray and biotene mouthwash. Someone recommended that. She suggested I stop using antihistamines but it is hard. I do have a nettipot. Been sucking on cough drops. I appreciate your post. I hope you too find a pcp that cares. I know it's not easy. Do you have problems with swollen glands and throat? That's what scares me the most. Had gallbladder out this past January since then its been like a domino effect with gastro and autoimmune problems.
Replies to "Thank you and thank you for the tips. I'm sorry you are dealing what I have..."
I have swollen, achy parotid (?) glands on only one side. I'm not even mentioning it to anyone because I have other more serious problems that need to be attended to. It sure sounds like you are doing everything that could be helpful for the dry mouth. The Evoxac has been the only thing I've tried that actually worked. Good luck in finding a solution for relief.
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@eileenb1022 I’m really sorry that you’re in the middle of trying to find a good doctor. Once you find a doctor, be sure he/she knows that you think you have an autoimmune disease. I kept telling the doctors to “think outside the box.” None of them did, but maybe they learned that they should.
To help your doctor find out if an autoimmune disease is causing your symptoms,:
Learn about the health conditions in your family history. What health problems did your grandparents, aunts, uncles, and cousins have? Write down what you learn and share it with your doctor.
Keep track of your symptoms, including how long they last and what makes them better or worse. Share your notes with your doctor.
See a specialist who deals with the symptoms that bother you most. For example, if you have rash, see a dermatologist (skin doctor).
I know that you have a wait before your appointments, but you can put it to good use. Do as much thinking and planning as you can!
Have you come up with a list of questions for the doctor when you see them?