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Sjogren’s Syndrome – Introduce yourself and meet others

Autoimmune Diseases | Last Active: Dec 3, 2023 | Replies (621)
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@suzfuse46

I'm so sorry that you are in a difficult situation with trying to find medical help. I am also in that same position having a PCP who is pretty much incompetent and uninvolved in patient welfare. Alternative methods to control dry mouth are chewing sugarless gum, sugarless candy or cough drops and using a Neti pot to keep your nose hydrated and cleansed. Best of luck with your upcoming appointments. I hope you find some needed advice in controlling the problems.

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eileenb1022 | @eileenb1022 | Aug 18, 2022

Thank you and thank you for the tips. I'm sorry you are dealing what I have regarding pcps. I have been through the same thing for over a yr
New pcp I see in 2 weeks is about 3 hours away in Boston. Hoping she will be better. I have a humifier running, laying down, using saline spray and biotene mouthwash. Someone recommended that. She suggested I stop using antihistamines but it is hard. I do have a nettipot. Been sucking on cough drops. I appreciate your post. I hope you too find a pcp that cares. I know it's not easy. Do you have problems with swollen glands and throat? That's what scares me the most. Had gallbladder out this past January since then its been like a domino effect with gastro and autoimmune problems.

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