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Looking to connect with people who have non-diabetic neuropathy
Neuropathy | Last Active: Jul 14 1:33pm | Replies (960)Comment receiving replies
I started with just Duloxetine and that didn't help much at all. It's hit and miss with Duloxetine and Gabapentin together. Some nights I go to sleep right away with the meds and other nights, I toss and turn because my feet feel hot and swollen. There isn't pain per se, it's more like my feet are bound and they can't get loose. That's a constant. I think it also depends on whether or not I have exercised much during the day. I wear Birkenstocks most of the time and my feet do not hurt at all when I am wearing them. If I take the Birkenstocks off, the feet feel bound. I wear Hokas for exercise and my feet feel okay in them. I've also tried not taking the meds and that has worked for one night but after that one night, I have to start taking the meds again in order to get relief.
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Hi poodlemom6 & thanks for the post. I'm newly diagnosed with SFN, and after a whole lotta blood work-ups they've offered absolutely a whole Lotta nothin' as to why I developed this disease. I began experiencing burning about 7 months after an intense foot surgery to repair a torn posterior tibial tendon. Today, my foot is not healing, it's likely I'll need another surgery and I'm not sure what to do about the SFN. GABAPENTIN did nothing for me. I'm on Lyrica (pregabalin) and that's no better. I also take baclafen and oxycodone for pain during the day, and mirtazapine and ropinirole at night. Those 4 help with pain and chronic insomnia. My pain doc has referred me to participate in a one-week study by Abbott for a device that uses neurotransmitters to block pain. I'll try it, but from what I've read the jury's still out. Plus most have to continue taking some type of pain med.