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Polymyalgia Rheumatica (PMR) | Last Active: Jul 27 8:00am | Replies (468)

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@johnbishop

The one thing I learned from my rheumy was that you have to listen to your body when you start tapering, slow and easy wins the race when tapering. Took me 3 and half years to taper off the first time I had PMR and the last six months was going back and forth between 1 mg and 1/2 mg until I was finally able to stop taking prednisone and my aches in the morning were minimum and got better as I started to move around.

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Replies to "The one thing I learned from my rheumy was that you have to listen to your..."

juneh | @juneh | Aug 19, 2022

Hi …I agree that’s it works better to ramp down slowly. I’ve had PMR since last spring and started on prednisone in Sept. 2021. I’m at 10mg (down from 20 since January) and 99% pain free. At this point it takes me 5 days of going back and forth between the new and old dose to ramp down to the new dose. I’m ramping down 1 mg at a time. When I get to 6mg, I’ll taper 1 month at a time. It’s really hard to be patient on the tapering as I’m having some side effects (gastritis, sugar hovering around 100, bottom reading on blood pressure lower). A couple of times I’ve stayed at a dose for an extra few days to be on the safe side.

BTW…I tried curcumin and acupuncture for three months before going on prednisone. They were not effective.

Hope this info is helpful! I really appreciate the blog!

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