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PMR Dosages and Managing Symptoms
Polymyalgia Rheumatica (PMR) | Last Active: Jan 6 12:05pm | Replies (442)Comment receiving replies
I'm so sorry to hear this and completely sympathize with your situation. 40mg is definitely a higher dose, but it works, and I'm hoping to be able to step down soon. If 20mg isn't working for you, I agree with others that you should definitely try to see a new doctor/rheumatologist. From what I've learned, too many doctors are overly fixated on reducing steroid use at the expense of pain--and pain equals inflammation, so they're not actually treating the PMR if they don't eliminate the inflammation before starting a taper. The side effects are pretty miserable, but frankly I'd take them over the pain any day. Good luck to you and I hope you find relief soon.
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Very sorry to hear that your pain is not resolved. I will echo what others have said, speak with your rheumatologist or seek a new one that will listen. My pain was not resolved with 20 mg so I spoke with my rheumatologist and shared my pain diary with him. He increased my prednisone to 25 mg based on that for 2 weeks and that was all that was needed. I have now been able to begin tapering and am already back down to 20 mg. John (our moderator) does a great job of reminding us of the benefits of keeping a pain journal and I believe that it could be key to helping your rheumatologist understand how you are responding to treatment. Good luck!