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PMR Dosages and Managing Symptoms

Polymyalgia Rheumatica (PMR) | Last Active: Jan 6 12:05pm | Replies (442)

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@joeblo746

My PMR pain can be so severe, so debilitating. I feel for you. I wouldn't wish this on anyone. 20mg of Prednisone daily doesn't get it done. My doctor won't increase the dose because of concerns about the potentially risky side effects. I'll take those risks if it'll stop this pain.

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Replies to "My PMR pain can be so severe, so debilitating. I feel for you. I wouldn't wish..."

@joeblo746, If the 20 mg doesn't get it done for you it's time to have a serious chat with your doctor and possible seek a second opinion from a rheumatologist. We are all a little different and there are some conditions that mimic PMR symptoms which can be hard to diagnose.

-- Diseases that mimic polymyalgia rheumatica (PMR): https://www.medicalnewstoday.com/articles/diseases-that-mimic-polymyalgia-rheumatica

Members that have had Giant Cell Arteritis (GCA) along with their PMR generally have to start treatment at a higher dosage of prednisone than what a lot of primary care doctors consider the standard dose of 15 to 20 mg prednisone.

Can you ask your doctor for a referral to a rheumatologist?

I'm so sorry to hear this and completely sympathize with your situation. 40mg is definitely a higher dose, but it works, and I'm hoping to be able to step down soon. If 20mg isn't working for you, I agree with others that you should definitely try to see a new doctor/rheumatologist. From what I've learned, too many doctors are overly fixated on reducing steroid use at the expense of pain--and pain equals inflammation, so they're not actually treating the PMR if they don't eliminate the inflammation before starting a taper. The side effects are pretty miserable, but frankly I'd take them over the pain any day. Good luck to you and I hope you find relief soon.