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Sjogren’s Syndrome – Introduce yourself and meet others
Autoimmune Diseases | Last Active: Dec 9 10:31am | Replies (661)Comment receiving replies
@eileenb1022 Be very careful if you’re told that a doctor or hospital or whatever, is out-of-network. This means that insurance doesn’t cover for the visit or treatment and it can be terribly expensive!
See if there are any large medical centers or university medical centers in your area (even if it means a drive). That’s what i had to do. No one in this town knew how to handle my autoimmune disease, so we went to the university medical center. Some of my visits are virtual and some in person. Another mentor drives 2-3 hours!
Do some investigating, don’t settle! Think you can do that?
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this place is a drive. 2-3 hrs. where i live for a yr i lived in the er. i have to travel to a neighboring state to a city, boston that has better healthcare. this rheum isnt out of district for me just the sinus dr for some reason even though they are in the same city. new pcp is in boston a 3 hr drive and im hoping she will send the referral. sinus dr cannot but i had to get a marketplace insurance to be seen in boston unfortuently the agent that signed me up wasnt honest and its only a limited insurance at least until nov 1. so im responsible for half the bill but i have to do this. i also have GI issues alot of issues it seems like its been a domino effect since my gallbladder came out in jan. GI here dropped the ball on me left me with a {"supposed biopsy finding" then nothing so seing new GI in boston in nov so he can do what this other GI didnt. oh yeah alot wrong with me its just so overwhelming!