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Sjogren’s Syndrome – Introduce yourself and meet others

Autoimmune Diseases | Last Active: Dec 9 10:31am | Replies (661)
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@eileenb1022

@becsbuddy im glad you got my post and i didnt have to start over. yeah my sinus dr the hospital next to him rheumotology can get me in until feb. no way can i wait that long. new pcp who i see for the first time isnt for 2 weeks. but i just messaged my sinus dr's nurse to see if he could send a referral to this other rheum where my pcp is. its in the same city. she said something about out of network which i dont understand she said it wouldnt hurt me to wait another 2 weeks. sigh. it is for me. but this other rheum said i could probobly get in before feb so now seems i have to wait and hope new pcp will hear me. im doing the best i can thank you. id love to hear from others just for the support and to see if they have similiar symptoms. 😉

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Becky, Volunteer Mentor | @becsbuddy | Aug 17, 2022

@eileenb1022 Be very careful if you’re told that a doctor or hospital or whatever, is out-of-network. This means that insurance doesn’t cover for the visit or treatment and it can be terribly expensive!
See if there are any large medical centers or university medical centers in your area (even if it means a drive). That’s what i had to do. No one in this town knew how to handle my autoimmune disease, so we went to the university medical center. Some of my visits are virtual and some in person. Another mentor drives 2-3 hours!
Do some investigating, don’t settle! Think you can do that?

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