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Sjogren’s Syndrome – Introduce yourself and meet others
Autoimmune Diseases | Last Active: Dec 3, 2023 | Replies (621)Comment receiving replies
@eileenb1022 I’m sorry if MCC caused some confusion for you. @colleenyoung DID move your comments to an existing discussion that is about Sjögren’s syndrome. You will be able to meet other folks who have sjogren’s and get good information.
I’m glad you feel more hopeful about your new doctors. It is so important that you feel heard and validated. There is so much new information about autoimmune diseases and so many new diseases, that the doctors are still learning. I saw a new neurologist yesterday and when she saw my diagnosis, she said,”wait, what is this? I’ve never heard of this before!” It gave me an opportunity to educate her.
Can you keep some good notes on what is happening and focus on the sjogrens?
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@becsbuddy im glad you got my post and i didnt have to start over. yeah my sinus dr the hospital next to him rheumotology can get me in until feb. no way can i wait that long. new pcp who i see for the first time isnt for 2 weeks. but i just messaged my sinus dr's nurse to see if he could send a referral to this other rheum where my pcp is. its in the same city. she said something about out of network which i dont understand she said it wouldnt hurt me to wait another 2 weeks. sigh. it is for me. but this other rheum said i could probobly get in before feb so now seems i have to wait and hope new pcp will hear me. im doing the best i can thank you. id love to hear from others just for the support and to see if they have similiar symptoms. 😉