← Return to Undiagnosed for nearly 4 years, need some quality of life back!
DiscussionUndiagnosed for nearly 4 years, need some quality of life back!
Digestive Health | Last Active: Aug 25, 2022 | Replies (38)Comment receiving replies
Replies to "@sandy1234 - I recognize some of your symptoms. I have nausea, feeling full, bloating (always), exhaustion..."
Thanks for the reply. So sorry to hear you're suffering too. At the start I lost a huge amount of weight, about 2.5 stone, so I was put on liquid nutrition drinks, which I still take and have gained weight.
I'm in the UK, and the last time I saw a gastro was 2 years ago. I made a complaint against the hospital as they took a year to order a gastroparesis breath test, with no appointments in between, so now they say there's nothing more they can do for me.
I've already exhausted any funds I had going private a couple of years ago, which was just online appointments during Covid, in which the Dr said I could possibly have multisystem dysautonomia, then through them I purchased a parasym to stimulate the vagus nerve, which did nothing. He also prescribed tablets for gastroparesis, not knowing I didn't have it, which led to awful body tremors, diarrhea, and pain.
I did wonder about autoimmune diseases, especially lupus, but not sure how I'd get tested for them when I have no doctor?
Also,.I did have a test for gut inflammation, but it came back negative.