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@crepass

Hey, I am new this year to antibx and 7%saline nebs. It has been a period of adjustment since I still work. I only have a very good infectious disease doctor (who is open to suggestions I get on this group chat) and will get a pulmonologist when I find time. (hopefully next year). I had to quit the rifampin due to side effects. but am managing the other 2(3x a week). She suggested arikayce lately, but I said no until I get results from a november CT scan. (I do not have lung cavitations).-(Does anyone know if the new protocols add arikayce for nodular MAC?) I got use to the nebs after a week, but I must admit, I'm down to once a day because I figure I'm coughing up some sputum daily, using aerobika, and postural drainage (Yoga bridge) and I haven't been sick this year except for a virus that did not turn into an exacerbation. I may have to extend this treatment period ....but it fits my schedule. Good luck with your journey. Questions are always good. Cindy

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Replies to "Hey, I am new this year to antibx and 7%saline nebs. It has been a period..."

Arikayce is recommended as an add-on to the standard treatment (Big 3) IF the patient has refractory/stubborn MAC. This is regardless of presence of cavities. MAC is considered refractory if the patient is on at least 6 months of standard treatment without achieving sputum conversion.