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Has anyone experienced internal vibrations?

Brain & Nervous System | Last Active: 3 days ago | Replies (888)

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@rwinney

@maggie1960 I hope today finds you well. I agree that you've got to do what makes you feel most comfortable and confident in your doctor, especially when exploring new territory. When are you due to go over existing test results?

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Replies to "@maggie1960 I hope today finds you well. I agree that you've got to do what makes..."

Her idea of going over existing test results is posting them for access through the patient portal. When I messaged her through the portal about answering questions her nurse replied for her, saying she, the nurse, had called me the morning after the test results were posted to ask if I had any questions. I hate to call anyone an out and out liar but I never received the phone call, and there was no voicemail message from the nurse. The most the doctor did was to write a couple of little notes out to the side of a couple of things that were out of range saying I could discuss them with my primary care physician. Obviously she did not think it important enough to discuss with me, or that there was no relation in the test results to neuropathy. My primary care physician has been out of the office for two weeks and I won't be able to see him until Sept 2. I am scheduled to have a nerve conduction study on Sept 1.
However, I may delay that since I am in the process of finding a new neurologist. The referral for the one I want to see should be processed by tomorrow. He's very hard to get in to see so it may be awhile before I can get an appt. However, my follow up with the current neurologist isn't until Nov. 17th, so I probably will be able to see him before she wants to see me again. At this point I'm not even sure why she want to see me again since she has no comment on test results and won't answer questions.
I've been on gabapentin at 300 mg 3 x a day for about 10 days, as prescribed by her, with no relief whatsoever. I know it takes time for it to kick in, but I just didn't realize how long. I messaged her today to ask and she said it takes 4-6 weeks. My pain is worse on some days than others, but particularly bad at night. I asked her what can be done for pain while I'm waiting over the next few weeks for gabapentin to "kick in". Her answer was to take tylenol or ibuprofen, and other than that there were no alternatives. I told her that those two medications don't make a dent in the pain when it is at it's worst, and that it was a sad state of affairs that the medical profession could not do better to alleviate someone's pain. She had no reply to that which did not surprise me. I guess you can tell I am more than frustrated. A friend of mine jokingly said, well if nothing else helps just have a martini. Good thing I'm not a big drinker.

Wanted to mention that I have an appt with a highly reputable nutrionist, but it's not until Nov 9th. The good ones are always hard to get in with!