← Return to Undiagnosed for nearly 4 years, need some quality of life back!

Discussion
Comment receiving replies
@emmakup

Hello Sandy, first of all, I'm so sorry that you are going through this. I have been through a similar past few years some of the symptoms seem familiar although not all of them, the symptoms that resonate with me are; immense nausea, extreme upper abdominal pain, bloating, fast heart rate and extreme fatigue.

I started nearly three years ago (I'm now 29) with my pains they thought it was my gallbladder so they took it out and the pains multiplied, they were more frequent and painful. Like you, I had hundreds of tests, MRI, CAT scans, intestinal transition tests, gastroscopy etc. They could not find anything until a month ago, they were testing me for celiac disease so they took a stool sample, in the test it showed up that I had pancreatic insufficiency, we are now doing more tests to try to find out exactly why my pancreas isn't functioning correctly, however, there is a type of pancreatitis that does not show up in a lot of tests, maybe you could ask your doctor for a stool and blood test to check your hepatic enzymes and pancreatic enzymes, as I said before all of the symptoms don't resonate with me but a lot of them do.

My pains appear mostly in the middle of the night, but I can have sometimes 10 episodes a day, it normally happens when my stomach is empty. If you have any questions feel free to ask, wishing you the best.

Jump to this post


Replies to "Hello Sandy, first of all, I'm so sorry that you are going through this. I have..."

So sorry you're going through this. I know I've had a pancreatic elastase test which came back negative, but I just don't know at this point. It feels as though I'm no closer to a diagnosis than I was nearly 4 years ago. Do you experience constant nausea or just during the episodes?