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rabbit10 (@rabbit10)

Anyone here dealing with peripheral neuropathy?

Neuropathy | Last Active: Aug 16 7:39am | Replies (2543)

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@dongoldwater

Is there, are there really any treatments? I have about 20%use of my right hand 70% of my left hand and continue to deteriorate. I read the sanexas scam articles and am feeling a tad depressed. source of neuropathy is from reconstuctive surgeryc2-c6.

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Replies to "Is there, are there really any treatments? I have about 20%use of my right hand 70%..."

Welcome @dongoldwater, Pain from neuropathy can be a difficult thing to treat like you have found out and there are a lot of companies making money off of neuropathy patients seeking relief from their pain. I have no medical background or training but think some of this is due to the type of neuropathy, it's cause and the fact that each of us are different when it comes to pain threshholds. I think Sanexas has really helped some people including one of our members @duquer who shared his story here – https://connect.mayoclinic.org/comment/645606/.

I don't think it would help my neuropathy as I only have numbness and no pain. Also, my neuropathy diagnosis is idiopathic small fiber peripheral neuropathy. I shared my story and what helps me here – https://connect.mayoclinic.org/comment/310341/. While I feel the supplements I take have helped me and possibly slowed or stopped the progression, they may or may not work for others.

So, my thoughts are there are a lot of treatments available and unfornately it's up to us to find one that helps. That's why I try to encourage members to learn as much as they can about their diagnosis and become a better advocate for their health and treatments. My neuropathy diagnosis is the pits compared to my polymyalgia rheumatic (PMR). If my PMR comes back, I just have to take prednisone until I'm able to taper off it with little to no pain remaining.

It sounds like your neuropathy pain is a result of nerve damage or compression from your spine surgery. There is a discussion on Myofascial Release Therapy (MFR) that others have found helpful in relieving pain from neuropathy and other conditions.
— Myofascial Release Therapy (MFR) for treating compression and pain: https://connect.mayoclinic.org/discussion/myofascial-release-therapy-mfr-for-treating-compression-and-pain/

The Foundation for Peripheral Neuropathy also has a list of complementary and integrative treatments that you might find helpful here — https://www.foundationforpn.org/wp-content/uploads/2020/08/Complementary-and-Alternative-Treatments-Revised-2020-final.-1.pdf

Have you heard of Myofascial Release Therapy or tried any other types of treatments?