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MAC & Bronchiectasis | Last Active: Oct 22, 2023 | Replies (38)

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@mtyler

This is all very helpful information, the 2018 information from Terri on applying for disability and the replies , comments and reactions from all on their experiences. I have had Bronchiectasis for sure since 2019 and prior , with recurrent treated for pseudenomas, staph, and MAC. Not currently taking MAC meds but because of my full time job have not been able to do my Airway clearance treatments and devices. I keep thinking about asking for accomodations such as working remote but don't know where to start as my employer relies on me too much so I feel a sense of obligation but obviously I am not taking care of myself as best I can. Is there any cellular level research on Bronchiectasis treaments? such as there is with CF? My niece who has CF is taking a new cellular level treament where her lung function is actually increasing. Minette

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Replies to "This is all very helpful information, the 2018 information from Terri on applying for disability and..."

@mtyler, by cellular level research I assume you to mean regenerative medicine, othewise known as stem call treatment. Stem cells offer great promise for new medical treatments.

You can read more about regenerative medicine and lung disease on Mayo Clinic's regenerative medicine website here https://www.mayo.edu/research/centers-programs/center-regenerative-medicine/focus-areas/lung-regeneration

Excerpt
"Regenerative medicine has the potential to provide innovative new therapies for people with lung diseases, including chronic obstructive pulmonary disease (COPD), pulmonary fibrosis, cystic fibrosis, pulmonary arterial hypertension and bronchiolitis obliterans."