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New to MAC and considering treatments options: What did you do?

MAC & Bronchiectasis | Last Active: Nov 19, 2023 | Replies (190)
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@macheese

Here's the link-
https://beta.clinicaltrials.gov/study/NCT04594369?patient=Bronchiectasis%20&locStr=Current%20Location&lat=36.0636954&lng=-86.7572938&distance=50&aggFilters=status:not%20rec

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Replies to "Here's the link- https://beta.clinicaltrials.gov/study/NCT04594369?patient=Bronchiectasis%20&locStr=Current%20Location&lat=36.0636954&lng=-86.7572938&distance=50&aggFilters=status:not%20rec"
mobley77 | @mobley77 | Nov 4, 2022

I recently signed up to participate in the brensocatib trial at a facility in Salt Lake City, but was informed today (less than one week before my appointment) that I would have to provide 5ml sample of sputum (without the help of inhaling saline) to qualify for the trial. I know from past experience that I cannot produce sputum without the help of inhaled saline, and my pulmonologist has resorted twice to my having a bronchoscopy to get a sputum sample from me.

I was told by the coordinator for the research facility that this requirement is the main reason so many people don't qualify for the drug trial.

Has anyone else experienced this?

Alice

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