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Undifferentiated Connective Tissue Disease turning into Lupus?
Autoimmune Diseases | Last Active: Nov 13, 2023 | Replies (23)Comment receiving replies
I have been on hydroxychloroquine and methotrexate for six years. Basically, my symptoms are 80-85% better, but I do occasionally have little flares. My flares are not new symptoms, though. Unfortunately, with a rare condition like UCTD, nobody knows what to expect. I think of UCTD as pre-lupus. We can cross that line anytime. Reassuringly, though, the majority of us do not go into lupus. Maybe you need a new or additional medication. Tell your rheumy that hydroxychlorquine isn't working well enough. What are the new symptoms that you are experiencing?
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Hi @patyrod , thank you for reaching out! My symptoms started with rib cage pains and collar bone pains, always felt as someone was stabbing me in the ribs or pressing something on my chest. Two weeks ago however I woke up with a terrible stabbing pain in my shoulder blade, I believe right where it moves. Laying down on laying my back on something made it worse, moving it too much also was bad. I took prendisone for three days, plus some Advil and put some icy/hot gel on the area and it slowly got better. I also had for two days some terrible pain in my hip (same side of the shoulder blade pain) which went away and never came back. As of right now, my shoulder still hurts sometimes, not sure if it is related to uctd or I just injured it somehow.
As for you, my symptoms are much better with Hydroxychloroquine, so I am trying to identify what caused this flare up. The only thing I can think of is I have been under a lot ot stress since end of june, which ended exactly the week before my pain started again.