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Anyone had Metastatic Squamous Cell Carcinoma?

Head & Neck Cancer | Last Active: Nov 10, 2023 | Replies (53)

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@jamirenee72

I started my cancer journey back in Feb 2020; I had a spot on my lip that I thought was a pimple I didn't ever pay much attention for almost 2 years .
I finally took the steps to get it treated I underwent surgical procedure to remove the mass that was squamous cell I returned to the surgeon approx. 9 mos later because I still experienced a weird painful sensation and drooling I never did before . Fast forward on July 20:I had to undergo more surgery because it showed in my lymph nodes and now I start radiation my diagnosis mestastic squamous cell I am scared

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Replies to "I started my cancer journey back in Feb 2020; I had a spot on my lip..."

I have had metastatic SC Carcinoma for over 9 years now. Original tumor in external ear canal, involved facial nerve and bone before diagnosed. Surgery was subtotal temporal bone resection plus superficial parotidectomy and lymph node dissection of neck. Those nodes were clear but surgical margins were not. Followed with Cetuximab targeted therapy and radiation for 7 weeks. First and second mets were in lung 18 and 36 months after initial surgery. Both removed via video assisted thoracic surgery. Lymph nodes were clear. Next met was a growing lump on pectoral muscle below shoulder. Surgical removal but no lymph nodes taken. Last met was over a year and a half ago in kidney with associated lymph nodes positive on PET scan. Started on an immunotherapy Cemiplimab and since last December have had no visible cancer. All this has taken place at Mayo Rochester. Dr Katharine Price is my wonderful oncologist there. There are newer immunotherapies available now for this disease with some good results. Was your tumor HPV associated? Mine was not and skin associated tumors like mine may respond differently than the HPV tumors. With the newer drugs available this diagnosis may be more treatable even if not curable. I have also done a complementary therapy of immune augmentation therapy in the Bahamas for the last 10 years. Do your research and consider a referral center for your best care.

@jamirenee72, I can imagine you're scared. Metastatic cancer are hard words to hear, but you are not alone as you can see from the replies your received from @sepdvm and @jimthomasintl. I'd also like to bring @srm @hoppy and @lori58 to share their experiences and journey along with you.

Jamir, when will you start radiation and how many sessions will you have? What is your main concern that you'd like to know more about?