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← Return to COVID vaccines and neuropathy
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Ms. Young, I understand your point and it is valid, but there is a problem when the standard approach of entrusting one’s own physician with your illness isn’t working. By and large, most of the people on this thread are being ignored or placated by their physicians, or their physician just doesn’t know how to help them. You begin to lose trust in the only system of care you have, and VAERS is part of the same system. Additionally, VAERS is only one source of data. Other evidence needs to be considered as well. What I wish is that the few who do seem to have docs who believe them and really are trying to figure this out would ask those physicians to take this problem forward and increase awareness of it through their professional channels. I have personally asked my own neurologist, who practices at an academic medical center, to gather some of his colleagues to research these vaccine reactions. Unfortunately, he does not fall into the group who is motivated to help.
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Seems that doctors who "raise their hand" to say something are silenced, just like people on Facebook who say ANYTHING about their PERSONAL EXPERIENCE with C-19 vax are locked out. I've been locked out of my FB account TWICE just for even suggesting this might be the cause of my neuropathy, brain fog, and mobility issues.
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I am partial to Neuropathy getting the most attention for any type of research for understanding what this ailment is about since a lot of us in the forum already fell into the idiopathic no-clue category of PN before Covid came along, and it’s been a major life changer. My doctor wouldn’t even explore my theories on what might have caused my PN, as there isn’t much of a collection system to see or resources to research.
So I agree with @colleenyoung that we are so fortunate to at least have the VAERS to at organize snd centralize the affects being reported by people; it’s only as good as people report, but is a tool that researchers dedicated to the system can methodically sort through and analyze, to hone in on the most common themes and prioritize further research and testing accordingly. I do not participate in other Mayo forums of different ailments, or any other medical websites, but I have different friends who believe the vaccine has left them with migraines headaches, heart palpitations, blurred vision, or tinnitus . Unless a system like VAERS is used to get the reported effects by patients, they’re unable to determine what symptoms are most common with enough data to help them focus on getting help and improvements to the most people.
Like I said, I’m biased toward finding relief for Neuropathy caused by the vaccine or anything else, so am hoping everyone is using the VAERS to help them determine Neuropathy effects are priority for further vaccine research. I know double counting skews data, but pray doctors are encouraging patients to use the system or providing them help to get it done on their behalf.