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← Return to Burning mouth syndrome (BMS)
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Hello @sheetrock0131 and @ladenole
I cannot even imagine your pain, and how difficult it must be living with Burning Mouth Syndrome for such a long time!
In one of your first posts, @sheetrock0131, you indicated that you were interested in learning more about Mayo Clinic and it's treatment paths for BMS. Have you visited the Clinic's overview/treatment options page? If not here is a link:
http://mayocl.in/2ebUG8h
I think you will find a lot of relevant information regarding BMS care at Mayo Clinic. Does this help prepare for your upcoming appointment with the neurologist?
Replies to "Hello @sheetrock0131 and @ladenole I cannot even imagine your pain, and how difficult it must be..."
Do you know of anyone who was treated and cured at Mayo???
Hi Pattty,
Thanks for getting back to me about the Lamotrigine- I thought it might be causing me nausea that I've been experiencing since starting it but I've now started taking it with food at lunch (the last real meal I can seem to eat lately)- which brings me to my next question for you- what are you able to eat? After being given chlorhexidine to help with my dry mouth- not only did the burning start up but I also lost my sense of taste. Foods I was able to eat a year no longer are bearable- I am living off a oatmeal, eggs; no fruits except an apple and most veggies taste awful as does meat. I can only drink water. Even protein smoothies are not going down well. Is this typical of this condition? I am so afraid if I ask my GI Dr. he will want to do another endoscopy -he didn't do the first one where this incompetent forced an instrument down my tortuous, i.e. twisted esophagus which was the start of this on-going nightmare. As a result, I am terrified of even going to an ENT Dr.- they don't believe me when I tell them how painful it is when they examine my throat and spray it with a numbing agent- which only causes me additional pain after it wears off. I am so tired of them treating me like I'm crazy.. I can't tell you how often I think of you- and you are in my prayers because I can't imagine how you have coped all these years you've had to deal with it.
Thank you again.
Maggie 45
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Thanks for your feedback.I did talk to my neurologist about the Mayo clinic.His thoughts about it,was he felt he could do and treat me the same way Mayo does..I believe it's going to be trial and error.I have exhausted every Avenue I can,all lead me to the same place.My tounge continues to burn..I am always depressed,due to the fact ,this will stay with me for the rest of my life..It debilitates me..I wanted to travel to Arizona with my husband to Mayo clinic.We own a large r.v.and would have no problem going,but I think that the same treatment that I'm getting here would be the same there.I could be wrong..