Hi .... this sounds absolutely awful ... I feel so sorry for you all who have to deal with it. Do they have any idea at all what causes it? It's obvious, from the number of people who have written, there are a lot of folks living with this, so it seems they should be working on some treatment. I can't even imagine what you're going through. If I eat too much chocolate, I'll get mouth ulcers, or my tongue will burn, but nothing like you're describing. Mine is my own doing and is gone in a day or so.
I have never heard of this before, but I'm sorry for all of you who are having to deal with it.
abby