Hi @marye2 , thank you for sharing your experience. Some of the things you have mentioned help me as well. My microwaveable heating pad was the only thing that helped me when I still was undiagnosed and same goes for some icy hot patches that would relax my muscles and calm down inflammation. But obviously they were only temporary so I have had days when my life was completely disrupted since I didn't have any medication that actually helped me until I saw the rheumatologist. But I totally agree with you about the fact that, more than the diagnosis, is about treatment of the symptoms, that's how I felt since the beginning. I didn't care if they didn't have a name for whatever I was experiencing, as long as they were able to find something that would help me go back to my regular life.
Thank you again for sharing!