Comment receiving replies
Replies to "Hello, I am new to this blog; however I have a 26 yr old daughter with..."
Hi @terik
It took me a while to find my epileptologist, but it was worthwhile the battle. I also have complex partial seizures (Temporal Lobe Epilepsy).
I was referred to my current epileptologist by a neurosurgeon who was referred to me by a mother with a son with epilepsy. Referrals work very well here in Brazil (I live in São Paulo city)! Unfortunately, I can not help you with referrals to a good epileptologist in the States. Perhaps your family doctor could be helpful? Have you tried to contact the Epilepsy Foundation in the States? This is a great foundation that could help you. Perhaps there are other people here in our group living in the same region that could refer you to a good doctor. In what region/city do you live?
All the best!
Santosha
@terik Frankly, you have been abandoned. Doctors as well as teachers and bus drivers have a tendency to move on or be detached. Happens to all of us. First, accept that fact. Second, keep reading the internet, especially these pages. Third, ask at places like church, or school, or Masonic, etc.
I am having the same thing. I have many AI diseases, and I am learning to put together a team of several specialists. It's about the only thing left. oldkarl