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Chronic Fatigue while tapering Prednisone for PMR
Polymyalgia Rheumatica (PMR) | Last Active: Apr 21 9:44am | Replies (95)Comment receiving replies
Hi
I laughed at your opening line. In a good way. I agree with you 100%. I didn't go down because I wanted to.but that was what was prescribed. I didn't know anything about PMR or.it's existence. So I am following docs orders. I realize now late into this that I have a doc and PA focused on the pred dose. It neverade sense to me...now I am paying for it. BUT I have learned a lot here. She is gunning for me to go on methotrexate or something else on top of pred. I had a hard time.when I tried methotrexate in 2015 for RA flare. So what do you think of using that as well? I have not seen many people here talk about meds like that. Thanks for the laugh and the info
I agree with what you are telling me. Now gotta make the doc see....I moved here a year ago so we are new doc/patient. M
Replies to "Hi I laughed at your opening line. In a good way. I agree with you 100%...."
My rheumatologist also suggested trying methotrexate. Per my rheumatologist, they see only a 50% rate of help with methotrexate, and there are a whole new batch of side effects. I discussed my concerns with my primary care physician and she agreed with me. I am only 5 months into PMR, and am not ready to add something new to the mix. I know that prednisone works if I am on the right dosage.
Hi, njodctode, "Laughter is the best medicine!" as it was once said by "somebody"!! Lotsa people use methotrexate. I never have to this point, so I don't know a whole lot about it. I know it doesn't work for everyone, but it does help many to get their pred dose down. You probably know much more about it than I do, as you've used it in the past. But you say you had problems, so that would need to be a discussion with your doctor. I think I would have a straight forward conversation with the doctor, saying you'd like another chance with the prednisone doing it the correct way - gradually - and see what kind of headway you make. And then if it doesn't work, the methotrexate might be called for. You need to go to a site called HealthUnlocked.com/pmrgcauk and go totheir FAQ's and look for their tapering plans - several to choose from- and see what works for you. Again, I wish you the best!
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@njtodctode, Loved your positivity in dealing with a new doctor 🙂 I think anyone struggling with a new doctor may want to read through this site and pickup some tips on patient - doctor relationships. Here are links to some of my favorite parts of the site:
The Patient Revolution - https://patientrevolution.org/
-- How We Revolt: https://patientrevolution.org/hwrdoc
-- Tools for the Visit: https://patientrevolution.org/visit-tools
-- Communications Barriers: https://patientrevolution.org/barriers
-- Let's talk about $: https://patientrevolution.org/cost