Epstein-Barr Treatment for Long Covid?
First, a little background: I'm 9 months in to Long Covid and just ended a treatment regimen designed by the InCellDx / Innovative Bioanalysis research group (Dr. Patterson et al). After 4 months of many medications that produced no results and only decreased my quality of life with side effects, I'm calling it. The only medication that improved my functioning was Ivermectin (which did so dramatically), but even that has plateaued for several months now. I'm now waiting until the end of October to be seen at Stanford's Post-Acute Covid Syndrome clinic and have little to no hope for that either.
The only explanation for my Long-Covid that has ever made sense to me is the theory that the virus re-activates latent Epstein-Barr in the blood. I had a very bad case of mono from age 15-17 that absolutely wrecked me, and some of my covid symptoms resemble my experience of mono, so this theory makes sense to me. For those of you who resonate with this theory and are seeking / have found treatment based on this assumption, what are you doing for treatment? Are you being prescribed medications, infusions, etc? I would be so grateful to hear about anything you may be doing or may have heard others are doing. Thank you!
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I too had mono at 19. Now long Covid 19 months. I think EBV was reactivated. Not until I went to Nova southeastern U in Ft Lauderdale FL to Chronic fatigue specialist, 2 months ago, did I get someone who understood. I am taking Valacyclovir 500 mg 2 times a day. Seems to be helping. They also recommended K pax immune vitamins that have special mitochondria formula that I will start soon. Also they recommend Small dose of Naltrexone. I am waiting to see if these other changes help first, as I don’t do well with drugs.
Hope this helps. See my long Covid posts for other comments.
Many viruses we all have had throughout our lives gives COVID the upper advantage. You first have to eliminate and system in the body for the symptoms you experiencing to eliminate a true malfunction like chest pain and the heart. If you do not have a treatable symptom. Then the roads most likely lead to the brain.. Longhaulers can not be fixed by a primary care after 6months. Longhaulers is complex and going to Mayo and meeting Dr Munipalli changed my life and the outcomes for me. Dr. Sletten and his team will help with true symptom relief. Good Luck.
My son had one of the youngest recorded cases of mono when he was 18 months old. Any little stress including vacations would cause the Epstein Barr Virus to kick in. High fever, sore throat, fatigue. He has had covid twice even though he was fully vaccinated and got slammed from the EBV. He now has to have throat and nose surgery at age 41. Any advise would be appreciated!
Just wanted you to know I’ve been dealing with post covid since last October. It was severe at time. I even had a CRP blood test that spiked to 96! Several MD360 visits, 1 ER visit and slowly getting better . Used an out of network dr who used repurposed drugs that really helped. I had a breakthrough last week with brain fog. I decided to take 10mg of my older adderall I had for add/adhd and it completely cleared up my brain fog. I’ve been taking it now for a week with excellent results. I’d encourage you to ask your healthcare provider if this is something you could try. My hearts in really good shape now so no concerns there. I hope this will help someone out there who’s suffering like I have been. Good luck and don’t give up!
I had covid a month ago and am still suffering from very bad shortness of breath. Didn’t have too bad symptoms for the first week and then this started. Cant move from chair to chair, or even just sitting, without feeling out of breath and heart pounding. Any ideas or help on this? Have asthma that used to be under control
Something as serious as what you are describing is something that a Physician needs to evaluate. And quickly.
I have to agree with rsfccowgirl. If you don't have a doctor who will begin a series of tests, go to the emergency room. It was there that I learned about Long Covid. I was kept for 3 days, a battery of tests were performed and I am now seeing a Pulmonologist and Cardiologist. Long Covid affects many, many organs.
Along with traditional doctors, I am seeing an herbalist who is treating me as she would treat EB, which is a virus, as is Covid. I am feeling better already and it has only been a short time of treatment .
What did they recommend?
It's actually a doctor and associates (Nurse Practioners) who practice functional medicine. They prescribe for each patient individually based on your symptoms. The first three weeks are simple--oregano oil and L Lysine twice a day. This is my third week and I have to schedule blood work that is more in depth than the general blood test. Then I will do a follow up and another 6 weeks with a different set of herbs or oils. They may do telehealth, if you want to call them let me know. They are in Tampa, Florida