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Anxiety about Intermittent Vision Loss With Trigeminal Neuralgia
Brain & Nervous System | Last Active: Aug 14, 2022 | Replies (6)Comment receiving replies
Hi Susan, I can imagine that you're very worried. Losing one's eyesight is a scary thought. I know that you've written before about double vision and other sight issues related to damage from a cataract surgery and possibly autoimmune issues.
Coincidentally, @agirlthing1977 started a new discussion that you may relate to here:
- Double Vision and Autoimmune Diseases like MG: Can anyone relate? https://connect.mayoclinic.org/discussion/double-vison/
Do you and your doctor think that this new vision loss is related to your diagnosis of polyarteritis nodosa, ophthalmic branch trigeminal neuralgia (TN) or possibly something new? Has the vision loss returned?
Replies to "Hi Susan, I can imagine that you're very worried. Losing one's eyesight is a scary thought...."
The double vision I have is a result of damage to my 4th Cranial nerve. It’s quite different and only happens when I look down and sideways…. I see things one on top of each other, not side to side double…
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My vision has not been a problem over the last 3 weeks.
I just had a biopsy done on my left temporal artery. The report is negative for Arteritis. All my tests are perfectly normal for someone my age.
I have to wait for my doctors to decide on a plan of action. There are several things that are being kicked around. What I am experiencing could be a neurological problem too so I have to wait. It’s very frustrating.
The Polyarteritis Nodosa damaged my large nerves so I would not be surprised if I have nerve damage around my head. However, they told me that Trigeminal Neuralgia doesn’t affect vision.
The eye surgeon who did the biopsy mentioned that the vision loss could have been caused by a retina migraine. She really doesn’t know.