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Living with Neuropathy - Welcome to the group

Neuropathy | Last Active: 3 days ago | Replies (6026)

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@johnbishop

Hello @maggie1960, Welcome to Connect. Hopefully your nerve conduction study on Sept 1st will help provide more information on the way to a specific diagnosis. Learning as much as you can about your condition will help you better advocate for your health and hopefully find a treatment that works for you. It sounds like you have that mind set already which is a great start. Here are a couple of websites you might want to bookmark for learning more about neuropathy:

-- Neuropathy Commons: https://neuropathycommons.org/
-- Foundation for Peripheral Neuropathy: https://www.foundationforpn.org/

You also might find the following discussions helpful:
-- Neuropathy 101 - Knowledge is power?: https://connect.mayoclinic.org/discussion/neuropathy-101-knowledge-is-power/
-- Member Neuropathy Journey Stories: What's Yours?: https://connect.mayoclinic.org/discussion/member-neuoropathy-journey-stories-whats-yours/

You mentioned having a very low monoclonal protein level but the doctor said it doesn't signify Multiple Myeloma which is great. Does your doctor think there may be a connection with neuropathy and a low monoclonal protein level?

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Replies to "Hello @maggie1960, Welcome to Connect. Hopefully your nerve conduction study on Sept 1st will help provide..."

Thanks, John, for the suggestions on the websites and groups. I'll definitely look at them.
My doctor, which at this point would be the neurologist, doesn't really answer questions, so I don't know what she thinks about a connection between neuropathy and the low M Protein level. All she did was make a note on the lab report that she would refer me to a hematologist. I had to do my own research, as most of us do, to even find out what the M Protein level meant. Hopefully, I will be seeing the hematologist this coming week. I don't know that he will be able to shed any light on it but I have to at least go and ask questions.
Thanks so much for your welcoming and encourging words!