Hi! I occasionally use Delta 8 tincture. It helps on days when fatigue & fever make it difficult to function. However, you need to be careful with dosing if used. It is powerful and suggested doses made me “high”, which wasn’t what I wanted when trying to go into office.( of course, with weight loss, I’m only 100 lbs). I had to adjust dose by trial and error but found that about 10 ml allows me to work on bad days giving me more energy and reducing that all around feeling of just not feeling well. Anyway,if not familiar- it is made with the hemp from marijuana. This recently became legal in my state.

Hello -
There have been a number of suggestions for tinctures, herbs, supplements, etc by members on Connect who are infected with MAC or affected with Bronchiectasis.

I wanted to see if I could help with your questions, so I took a minute to read through your posts. It seems that, like with many of us, it took a while to get a diagnosis and now you are waiting to see what drugs will be prescribed. And reading - and you are scared by what you read. ALL of this is familiar to me, and nearly everyone else who has/had MAC! It is a rare disease few people have heard of (until they get it) - and even most doctors and many pulmonologists are not well-versed in it.

So, let's back up a step and talk about the goals of Mayo Connect. The aims are to connect community members who have similar diagnosis to one another for support. Part of that support is to talk about what are the best courses of treatment, and what has helped us along the way. In addition, we encourage each person to her own best advocate & and informed consumer of both medical services and auxiliary treatments. Another piece is to make sure that any treatment recommended is safe, as well as based on some sort of science or research.

Now on to MAC and when/how to treat. It is a very slow-growing bacteria that can be found everywhere, so few of us know how we acquired it. It is quite difficult to eradicate once it takes hold, because it hides itself inside a tough "biofilm" shell. That is why it requires a rigorous long-term course of 3 (sometimes 4) antibiotics. Some people's bodies are able to get rid of it without treatment, others are never "cured" no matter what they take of for how long. In some lungs, it invades and causes nodules & cavities, in others it just hangs around with few symptoms. Ugh! How to know what to do?

National Jewish Health (NJH) and some other lung-focused research and treatment centers focus on this issue every day, and the recommendations are updated every couple years. Currently, it is 2 positive cultures, CT evidence of cavities or nodules, plus consultation with your docs. Treatment need not be automatic if the lungs do not show severe damage, one can WAIT and MONITOR. Watching this video from NJH is very helpful:

There is little scientific evidence that other herbs or supplements are both effective for fighting MAC infections and safe for long-term use.

I hope this helps message, along with watching the NJH video, helps you make some decisions.
Sue