← Return to Double Vision and Autoimmune Diseases like MG: Can anyone relate?

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@agirlthing1977

Thank you Elizabeth so glad to hear that your doing well. I think I’ve gone to every dr I know yes I’ve seen neurologist, RA , muscle dr. There’s one dr that said once I was cleared from all my test to go back and see him to see if it could be corrected with glasses. My neuropathy dr said since the steroids didn’t work wants to see if plasma infusion may work. I’m worried & don’t think I wanna go that route caused other health issues. Blood clots possible stroke. So yea I think I’m gonna do my own research I’m just extremely tired & stressed out. I feel that it gets worse when I stress out (which is very often ) lol I’m gonna go back to see eye dr to see about glasses. Im glad I found this site because it reassures me im not the only one I might just start using a patch. Thank you so much for all your details as for me I’ll be praying you 🙏🏼

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Replies to "Thank you Elizabeth so glad to hear that your doing well. I think I’ve gone to..."

@agirlthing1977 and all...I had a couple of plasma infusions when I was in the hospital for MG symptoms. Even though I didn't have MG, the infusions helped me feel better, have more energy, have easier movement, and have less pain. I had a nerve conduction test at Mayo that showed I didn't have MG and the Mayo ophthalmologists say the same thing, although I do occasionally have some Sarcoid eye problems. But, as the double vision increases, if it does and it appears it is, I'm heading toward a prism lens in my glasses. @patmet, how are you doing with the prism glasses? Are they heavy? Do they just look thicker than normal? I'm getting close to needing them most of the time. My eyesight is worsening, too.

Another thing I've found, my eyelids are quite droopy. This happens with age normally, but mine got so droopy I was seeing through little slits at times. I had eye surgery at Mayo to take out some of the lid tissue...guess you might call it like an eye job in plastic surgery, as it did a great job opening up the eyes and reducing the wrinkles. But, I don't have many wrinkles since using some magic creams/lotions. My lids are drooping again, so I'm close to needing the surgery again. There are specific parameters for surgery, which I meet easily.

I saw advertised on tv a new eyedrop that opens the eyelids and makes you look younger. I asked my surgeon if this drop would help me see better. Yes. She tested it and prescribed it for me. No insurance coverage, but I only use it when I need to see for driving or a day at the docs or out. I love the drops. They may one day be available to help some of us see better and paid for by insurance. They do help some with double vision for me. Doesn't resolve it, but can help.

Hope you get the medical help you need and find peace and comfort. Elizabeth