← Return to Double Vision and Autoimmune Diseases like MG: Can anyone relate?

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@ess77

@agirlthing1977, @nedradenise, @aspine, and all...I've had double vision for many years, maybe 20-25...It's no fun and seems to get worse when I'm tired, upset, or have dry eyes are worse. Then, there are times it goes away. I find if I close one eye, usually the left since it's easier to close, I see fine but for a bit off for peripheral vision. Watching a movie or TV is really fun! At night watching tv I often cover one eye.

I was misdiagnosed several years ago with MG. Mis-diagnosed. I don't have it. There are several other reasons for double vision. I visit Mayo Florida and they think it's more of a muscular issue. It can be corrected by special lenses in glasses if it gets bad enough. Mine is worse recently, so may look into the glasses again. We'll see.

But, most importantly to me, you mentioned your bloodwork is good and it appears the double vision is the only symptom. Do you have other physical symptoms causing you problems? Also, what does the doctor say about the prednisone not helping? I'm surprised you are on prednisone with just double vision symptoms. Steroids are strong meds and while they saved my life when I had Sarcoidosis years ago and now off and on as needed for bronchitis or other issues, they can take a toll on the body in other ways. Aside from weight gain and bone issues, it changes your body-I began to look permanently pregnant due to the prednisone enlargement of my belly. I've recently lost about 35 pounds but still and always will have an enlarged belly. I get a moon face every time I take prednisone, have had unwanted hair growth on my face and arms, and other issues. So, while it can be a life safer, be aware of the possibilities associated with taking it.

Also, why does your doctor diagnose MG? Are you seeing a rheumatologist? neurologist? I think it's very important to do a lot of research, be your own advocate to find answers, to find the right answers...Fight for knowledge and then go forward to improve your health. It's a journey that can be dificult, challenging, and productive. I'm healthier now than I've been in many years...still have the same illnesses, but am dealing with them differently and have excellent doctors working with me.

Be well. Be better. Be blessed. Elizabeth

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Replies to "@agirlthing1977, @nedradenise, @aspine, and all...I've had double vision for many years, maybe 20-25...It's no fun and..."

Thank you Elizabeth so glad to hear that your doing well. I think I’ve gone to every dr I know yes I’ve seen neurologist, RA , muscle dr. There’s one dr that said once I was cleared from all my test to go back and see him to see if it could be corrected with glasses. My neuropathy dr said since the steroids didn’t work wants to see if plasma infusion may work. I’m worried & don’t think I wanna go that route caused other health issues. Blood clots possible stroke. So yea I think I’m gonna do my own research I’m just extremely tired & stressed out. I feel that it gets worse when I stress out (which is very often ) lol I’m gonna go back to see eye dr to see about glasses. Im glad I found this site because it reassures me im not the only one I might just start using a patch. Thank you so much for all your details as for me I’ll be praying you 🙏🏼

How did you lose the 35 pounds? Specific diet or ???