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New to MAC and considering treatments options: What did you do?
MAC & Bronchiectasis | Last Active: 4 days ago | Replies (195)Comment receiving replies
I am in the same boat as you. I had repeated Ct chest for last year and a half and ea. time Mac has gotten worse. I too am not sick enough for Antibiotics at this point. They told me treatment is worse than disease. I just started with infectious disease and she immediately did blood work for underlying disease and sent my bronchoscopy specimen for sensitivity testing. This will let them know what antibiotics to use when and if we decide to start treatment. I tried 3 % then 7% saline in nebulizer both makes my throat so sore I can’t do it. It really dries me out. I’m going to talk to my doctor next month about it. It seems to work for most everyone. I wish you all the best of luck. I’m at my wits end on what to do as well.
Replies to "I am in the same boat as you. I had repeated Ct chest for last year..."
RE: sore throat w saline nebs.
Two things that I found that helps are switching from a mouth piece to a mask and breathing through nose/sinuses instead of mouth.
And I use some yogurt or thick cream to coat my throat before and while using the saline. Both these things made it so I can now use 7% or 3.5% regularly.
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Hi! I was recent diagnosed in April with MAC after living with mild Bronchiectasis since 2018.
I started treatment with the Big 3 in June. However, treatment isn’t necessarily as bad as symptoms even though I read the same things. After 2 months, I feel 50% better than I did before. Mind you, the side effects produce some of the same symptoms as the disease -but for me, on a smaller scale and more tolerable. You should definitely sign up for the virtual seminar sent by men 08. You can sign up by listing yourself under education speciality. This worked for me and someone emailed me directly concerning attendance. My best piece of advice// Get educated on your disease!! The medical community is just not well versed in this and you have to be your own health advocate. Really hope this helps!