Hi!
YES! Definitely seek a new pulmonologist and do your homework! Sue is right, this is a rare disease and most doctors know VERY little about it. Excellent advice to see if there is a teaching hospital near you. The experts are at National Jewish Hospital and you may can find some educational resources on their website. Also look up NTM info and aboutntm.com. What your doc did not tell you is that this is a life long battle and not everyone is the same degree of sick, experience the same symptoms or are effected by treatment the same. I would strongly advise you to research the FACTS. Also, you should have a lung function test and CT scan to help in your evaluation - gold standard for someone with MAC.
Hope this helps!

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