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Struggling with tingling, painful sensation on my hands

Colorectal Cancer | Last Active: Nov 2, 2022 | Replies (15)
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@fiona007

Hi, sounds like you are on a platinum based chemo which causes harsh neuropathy in hands and feet, but mostly hands first. You can ask for ice gloves to wear during chemo that can reduce the effect and take the supplement ALA (Alpha Lipoid Acid) is recommended to help with neuropathy . My hands got so bad after 7 treatments so I switched to a different chemo which did just fine and I got the use of my hands back after a period of time. One thing to be aware of is that the neuropathy from platinum based chemo is cumulative, so if you were to just keep doing a platinum based chemo, you may not get all the feeling back in your hands.

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Replies to "Hi, sounds like you are on a platinum based chemo which causes harsh neuropathy in hands..."
gugun | @gugun | Oct 30, 2022

Thanks for the feedback @fiona007. I tried the icing route but my oncology treatment team almost had a collective fit, and I couldn't insist. I'm on oxaliplatin, definitely platinum based chemo. My doctor reduced the dosage in cycle 3 when it became clear that the side effects I was experiencing were extreme. The idea of not getting feeling back in my hands is scary. It is even more scary because the numbness that started with my feet, has spread all the way the right leg to my bum. I just can't wait for this to end - and hopefully, it will end when I complete cycle 8 next month.

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