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Collagenous Gastritis

Digestive Health | Last Active: Feb 21 5:28pm | Replies (459)

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@laurchaser

Hi @mommyof6, my son was diagnosed one month ago and we live in the Bay Area. We have a GI at Stanford, but we are looking to fly to Boston for their specialist. Ours has him on an elimination diet, Prilosec twice a day, and a high-dose iron supplement. He was severely anemic as well, but the oral iron allowed his body to get to a low-normal range (although his stomach still shows bleeding). I'm sorry your daughter is going through this. Please let me know if you find anyone great out here.

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Replies to "Hi @mommyof6, my son was diagnosed one month ago and we live in the Bay Area...."

I was diagnosed with collagenous gastritis 3-4 years ago and continue to fly to Boston from the Southeast US at least once a year. Working with my doctor, I have found a treatment that works well and he thinks through every treatment. Definitely worth a visit to see the specialist. Before seeing him, I had a hemoglobin that got down to 4 once and had more frequent episodes. I will say, my disease seems to present differently than most (massive and unpredictable upper GI bleeds so my treatment is likely much different than others).