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Discontinuing MAC antibiotics

MAC & Bronchiectasis | Last Active: Nov 27, 2023 | Replies (73)

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@melissa08

Hi Sue,
That’s a great list and similar to the advice my husband’s pulmonary nutritionist gave us. The lack of appetite and feelings of fullness are two of the biggest hurdles, aside from the ongoing shortness of breath.
Bruce has been eating multiple small snack size meals a day of nutritious foods that are also low volume and high calorie and sipping on fruit and protein filled shakes and smoothies. Strawberry shakes are a favorite but it’s challenging to truly pique his interest despite the snack basket at his elbow.
Thanks for the support and information. I will be back with updates.
Melissa

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Replies to "Hi Sue, That’s a great list and similar to the advice my husband’s pulmonary nutritionist gave..."

A lack of appetite and feelings of fullness are what I am also experiencing. Why bother to go out to eat when you don’t feel like eating? I also deal with shortness of breath. I once said to my pulmonologist that I felt as if I would always be dealing with MAC. I did note that he did not respond but it was still a surprise when I read that what we are striving for ‘remission’ rather than a cure.

Diana