← Return to Chronic Fatigue while tapering Prednisone for PMR

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@njtodctode

Hi. I have had 3 sets of labs and my inflammation levels were high. I began prednisone. Then after 2 weeks at 20 syarted reducing dose. Had 2nd set of labs levels reduced by 20 points. Continued reducing dose. Pain levels went way up again. I was down to 10 myself. Restarted the 20 mg dose and now at 12.5gs. Symptoms have returned. Bad pain and exhaustion. Just got 3rd set of labs and I am almost where I was at the beginning. So I need to go back up to 20 maybe??? Before they got the labs this am, they told me to go back up to 15. Hmmmm. Your point about the fatigue....I first experienced chronic fatigue/EBV in the late 80's very debilitating. It's not being tired...it's much worse. I have found PMR fatigue to be that bad. It's awful and depressing. Pain only adds to the fatigue. These symptoms knock you down for sure. Here's to healing for all! ♡

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Replies to "Hi. I have had 3 sets of labs and my inflammation levels were high. I began..."

Hi, njtodctode, If I had to say anything about your tapering history, it would probably be what else can you get wrong? For starters - you stayed on your initial dose of 20mg for a whole two weeks! Uh, uh, uuuh!! And if I'm reading you correctly, it sounds like your inflammatory markers were up there pretty good. Most of us stay on our initial starting dose at least twice that long - depending on our symptoms and blood tests. At two weeks, the prednisone hasn't had enough time to clear out all that inflammation that has been building up in your system. So, you went ahead and lowered your dose meaning less "ammo" to work on that inflammation. It's no wonder you started having more pain! Yes, I guess you could try going back to 15mg, as suggested, and see how that works for you. If, at 15mg you're still in pain, you'll know that's not enough, and you should ask your doctor if you need to go higher. Once you get to a spot where you're no longer in pain, you need to stay there for a while until you're feeling really good. Then, you would start tapering down gradually, maybe 1 mg every 3-4 weeks, until you get to 10mg and are feeling good. But never go down if you're feeling pain.
Then you have to start slowing it down a little more. All of this can take awhile. But that's how you stay out of pain, and hopefully that's how you eventually get yourself off the prednisone. It takes a lot of patience. Good luck to you.