1. < Spine Health

Arachnoiditis: Looking to talk with others

Posted by arannek72 @arannek72, Jul 3, 2018

I just got diagnosed with arachnoiditis. The radiologist found it on my MRI. I have had 7 steroid injections and I fear that they have caused this chronic situation. My back is worse than it ever was.

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sandyltaylor | @sandrastaggs | Aug 10, 2022

After 6 back surgeries, and a diagnosis of Arachnoiditis my husband had a spinal stimulator put in his back almost two years ago.He is a new man. No back pain,no, radiculopathy,no neuropathy pain. He now can walk 3 miles a day without pain.
The key is educate yourself on the pros and cons of the implant and find an outstanding pain intervention doctor. Our best to you.

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1 reply
meri91364 | @meri91364 | Aug 10, 2022
In reply to @sandrastaggs "After 6 back surgeries, and a diagnosis of Arachnoiditis my husband had a spinal stimulator put..." + (show)
@sandrastaggs

After 6 back surgeries, and a diagnosis of Arachnoiditis my husband had a spinal stimulator put in his back almost two years ago.He is a new man. No back pain,no, radiculopathy,no neuropathy pain. He now can walk 3 miles a day without pain.
The key is educate yourself on the pros and cons of the implant and find an outstanding pain intervention doctor. Our best to you.

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Your husband is very very lucky the stimulator works. So many people have problems with it. I hope it continues to work!

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Donald | @donfeld | Aug 10, 2022
In reply to @rpennino "Hi I was told in July of 2017 I have Arachnoiditis in 2015 I had back..." + (show)
@rpennino

Hi I was told in July of 2017 I have Arachnoiditis in 2015 I had back fusion it failed and now have 8 levels of fusion. I could not find out why I was having so much pain even after the bones fused, one doctor fused my Sacroiliac joint on my left side now I walk with a cane and at 50 I feel like 80 I am in stage 3 hith Adhesive and scarring it has taken away all the things in life I loved that and the pain has been the hardest part. I am married with 3 boys and it is effecting my mind I feel it is winning and I don't have much time so trying to enjoy what I can wish you the best Ralph.

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I’ve had this condition for the last four years and I know how much it is to suffer with but I think I finally found the answer and it was right under my nose. It does not include opioids or surgery it’s just a certain medication that will really help your pain and get your life back in order. If you’re interested let me know.,? Donald exercise

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4 replies
jojo58 | @jojo58 | Aug 10, 2022
In reply to @donfeld "I’ve had this condition for the last four years and I know how much it is..." + (show)
@donfeld

I’ve had this condition for the last four years and I know how much it is to suffer with but I think I finally found the answer and it was right under my nose. It does not include opioids or surgery it’s just a certain medication that will really help your pain and get your life back in order. If you’re interested let me know.,? Donald exercise

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I’ve not been told I have this but it sure sounds close. I can’t sit around all day. I work full time and take care of my grandsons. I hate waking up every day to a headache or migraine. Keeping moving does help

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1 reply
Donald | @donfeld | Aug 11, 2022
In reply to @stephjane55 "I too have AA and Omgosh it’s ruining my life so bad :( I’m miserable and..." + (show)
@stephjane55

I too have AA and Omgosh it’s ruining my life so bad 🙁 I’m miserable and hurting non stop. I’d love to find someone that could help us. Gentle hugs

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I’ve discovered that a medication that Doctor Tennat who is a specialist arachnoiditis has been recommending for sometime is working for me. The problem is you have to find a doctor that’s willing to listen to these recommendations and take it serious. I have found that Doctor Who is a concierge doctor and has tremendous knowledge of this condition and is willing to prescribe this medication. If you’re interested let me know. Donald

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4 replies
lebanon100 | @lebanon100 | Aug 11, 2022
In reply to @donfeld "I’ve discovered that a medication that Doctor Tennat who is a specialist arachnoiditis has been recommending..." + (show)
@donfeld

I’ve discovered that a medication that Doctor Tennat who is a specialist arachnoiditis has been recommending for sometime is working for me. The problem is you have to find a doctor that’s willing to listen to these recommendations and take it serious. I have found that Doctor Who is a concierge doctor and has tremendous knowledge of this condition and is willing to prescribe this medication. If you’re interested let me know. Donald

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Interesting development. Please share the name of this medication.

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stephjane55 | @stephjane55 | Aug 11, 2022
In reply to @donfeld "I’ve discovered that a medication that Doctor Tennat who is a specialist arachnoiditis has been recommending..." + (show)
@donfeld

I’ve discovered that a medication that Doctor Tennat who is a specialist arachnoiditis has been recommending for sometime is working for me. The problem is you have to find a doctor that’s willing to listen to these recommendations and take it serious. I have found that Doctor Who is a concierge doctor and has tremendous knowledge of this condition and is willing to prescribe this medication. If you’re interested let me know. Donald

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I am very interested I can’t continue living the way I am 🙁

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lebanon100 | @lebanon100 | Aug 11, 2022
In reply to @donfeld "I’ve had this condition for the last four years and I know how much it is..." + (show)
@donfeld

I’ve had this condition for the last four years and I know how much it is to suffer with but I think I finally found the answer and it was right under my nose. It does not include opioids or surgery it’s just a certain medication that will really help your pain and get your life back in order. If you’re interested let me know.,? Donald exercise

Jump to this post

I'm interested. Thanks

REPLY
meri91364 | @meri91364 | Aug 11, 2022
In reply to @donfeld "I’ve discovered that a medication that Doctor Tennat who is a specialist arachnoiditis has been recommending..." + (show)
@donfeld

I’ve discovered that a medication that Doctor Tennat who is a specialist arachnoiditis has been recommending for sometime is working for me. The problem is you have to find a doctor that’s willing to listen to these recommendations and take it serious. I have found that Doctor Who is a concierge doctor and has tremendous knowledge of this condition and is willing to prescribe this medication. If you’re interested let me know. Donald

Jump to this post

What is the med? Who is the dr ? Where are you located ?

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lynetteh1 | @lynetteh1 | Jan 2, 2023

Does anyone have experience with Arachnoiditis. I have found that the doctors in my area have no experience with this disease. I have been communicating with Dr Tennant in West Covina. He is a Godsend.

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