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Eosinophilic Fasciitis: Looking to connect with others

Autoimmune Diseases | Last Active: Aug 8, 2023 | Replies (34)
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@philipnewbury

I have eosinophilic fasciitis (confirmed with biopsy). It affects both my arms and legs. It also affects my torso. Most of the studies and articles I've read only talk about issues with the extremities. I have banding at the waist and tightness in my rib cage (as though I'm wearing a corset). It affects my lung and diaphragm capacity so I get easily winded. Also, when I eat, I immediately feel full because my stomach cannot expand. Has anyone else experienced similar symptoms?
Also, the onset of my symptoms was within a couple of weeks of my second Covid booster (Moderna) in April. There was no other significant event around the time. Has anyone heard of the vaccine triggering autoimmune disorders?

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Replies to "I have eosinophilic fasciitis (confirmed with biopsy). It affects both my arms and legs. It also..."
duran24 | @duran24 | Aug 11, 2022

Thank you for your post, I appreciate it. I have EF (confirmed by biopsy) at the end of March 2022 and had/have similar symptoms with the exception of tightness to my rib. Thankfully, I didn't/don't have issues affecting my lungs or other internal organs.

My symptoms started two to three weeks after my second Moderna Covid vaccine in November 2021. Up until then, I was healthy and was fortunate not to have to take any medication.

I started developing symptoms in my torso to include skin thickening, leathering, discoloration and tightness. After that, the symptoms quickly spread to my neck, swelling and skin thickening in my legs, arms (both upper and lower, it felt like carpal tunnel and tennis elbow), breast area, lats, weight loss, night sweats and significant fatigue. I thought I was going crazy!! This has been a significant life changer for me as I'm sure it has been for you.

I know of several people that developed an autoimmune disease after their covid vaccinations. In my humble opinion and after reviewing various journal articles, I think we will see emerging evidence about the new onset of autoimmune diseases occurring after people receive COVID-19 vaccines.

I'm new to this and not sure if this is the right place to ask, but what treatment are you receiving and is it helping?

Best of luck to you and your family!!

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