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Discontinuing MAC antibiotics

MAC & Bronchiectasis | Last Active: Nov 27, 2023 | Replies (73)

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@melissa08

My husband’s ID/Pulmonologist and our primary care doc agree that taking a break from the MAC drugs may give him some relief. His June CT showed some improvement.
The side effects from the drugs have overwhelmed him and are doing more damage than good with the strain of constant SOB and continuing weight loss putting him in an ever weakened state. We are hoping the break helps him to get back on track.
Melissa

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Replies to "My husband’s ID/Pulmonologist and our primary care doc agree that taking a break from the MAC..."

Hi Melissa, I hope this will help him. Can you get him to drink smoothies? You can load them up with all kinds of nutritious calories to tempt him.
With all the fresh fruits right now, fruit, avocado, vanilla protein powder, yogurt (if it doesn't make his mucus worse) full fat coconut or almond milk - pureed with ice. I used to make it by the blenderful and sip 6-8 ounces every hour or so.
Also cashews, walnuts pecans, hazelnuts are all good high protein/fat snacks. Leave a little bowl near his chair for munching. Oh, and ice cream sundaes - if dairy is out, there are lots of alternatives available
Sue

Can you share what side effects your husband has experienced. I have been on the 3 meds for two years and am experiencing a range of health issues. They have hugely affected my quality of life. I don’t feel hunger and rely 100% on smoothies with various fruits in them. I have lost a little weight but there are days I can’t even walk across a room due to fatigue. I also am experiencing a lot of dizziness and even passed out a few weeks ago. On days when the dizziness is really bad I stay in my recliner most of the day. My hearing is taking a hit which I was told is due to one of the meds.
Diana